Comprehensive data from the ida project were the basis of the. Dec 14, 2012 caregiver burden considerably affects the lives of families providing care to people with advanced cancer. Oberst caregiving burden scale ocbs and the bakas caregiving outcomes scale bcos assessed caregiver burden. The scale was further shortened to a 10item scale in sample no. The impact of an educational intervention in caregiving. Unidimensionality was supported by factor analysis in both samples. Caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective wellbeing, and physical health as a result of providing. The 10item short version of the burden scale for family caregivers bsfcshortbsfcs was developed to provide an economical measure of this variable. The relationship between perceived life changes and mental. Further research using the proposed conceptual model and the hfcql scale is warranted. What score on the screening tool indicates a caregiver is experiencing high burden. The cornell scale for depression in dementia17 is a 19item, clinicianrated scale of depression symptoms that was designed for use with dementia patients. Two primary caregiver level outcome measures include the bakas caregiving outcomes scale bcos and depression phq9.
By adhering to the principles of pragmatic trials, this trial is designed to inform typical u. Stroke caregiver outcomes from the telephone assessment and. Validation of the revised bakas caregiving outcomes scale in. Informal caregivers of stroke survivors with spasticity for. Its items includes social functioning, physical health and subjective wellbeing and the higher total scores show positive caregiver outcomes 25. A change for the worst in caregivers was associated with improvements in functioning between admission and discharge p bakas caregiving outcomes scale bcos measures caregiver life changes specifically as a result of providing care. Caregivers sociodemographic characteristics, the oberst caregiving burden scale ocbs and the bakas caregiving outcome scale bcos. Caregiver burden was measured by the oberst caregiving burden scale ocbs and the bakas caregiving outcomes scale bcos. Burden scale for family caregivers in 20 european languages. Assessing the impact of caregiver outcomes on function and. The original 10item bcos was improved by adding five items addressing financial wellbeing, level of energy, role functioning, physical functioning, and general health. The bakas caregiving outcomes scale and a demographic sheet were administered to the caregivers.
Bakas caregiving outcome scale shows evidence of satisfactory reliability and validity in family caregivers of cerebral vascular accident survivors. Issues such as quality of life are now widely used in clinical trials and in patient management for assessing morbidity and the impact of. Heart failure family caregivers indiana university. Measuring the familyfriend caregiver experience in ontario. Started in 1995, this collection now contains 6767 interlinked topic pages divided into a tree of 31 specialty books and 732 chapters. To psychometrically test the revised 15item bakas caregiving outcomes scale bcos measuring life.
The bakas caregiving outcomes scale bcos was originally developed in 1994 to measure life changes in family caregivers of stroke survivors. Data were collected using demographicclinical characteristics form, bakas caregiving outcomes scale and general health questionnaire28. The original 10item bcos was improved by adding five items addressing. The results in this study demonstrated that the zarit burden interview is a valid and reliable instrument for measuring the burden of caregivers of pwd in singapore. Among the sociodemographic caregiver variables, interestingly, whether one is a sole or co caregiver for the patient was found to be unrelated to caregiver burden, unlike previous research which suggested that the presence of multiple caregivers led to reduced burden e. The most popular abbreviation for bakas caregiving outcomes scale is. Home care nurses rate a familys caregiving outcomes on three scales the frail elder outcome scale, the caregiver outcome scale, and the family outcome scale using a scoring range from 1 least positive outcome to 3 most positive outcome. The impact of education on caregiver burden on two. Responses are rated on a 5 point scale with scores ranging from 0 not at all prepared to 4 very well prepared. Revised scale for caregiving selfefficacy steffen et al.
An evaluation of the family informal caregiver stroke self. To develop and psychometrically test the bakas caregiving outcomes scale bcos measuring changes in family caregiving outcomes in the stroke population. The measure was modified by changing it from an interviewer to a selfadministered format, and by utilizing the original item set by dr lawtons group with individuals with tbi, with a resulting reduced item set being retained. This scale detects frailty and health instability and was designed to identify residents at risk of serious decline. Brazilian caregiver version of the apathy scale henrique cerqueira guimaraes1,2, patricia paes araujo fialho1, viviane amaral carvalho1, etelvina lucas dos santos1, paulo caramelli1,2 abstract no brazilian version of a specific scale for evaluating apathy in dementia is available. Do you think your own health has suffered because you have been taking care of your relative. Crosscultural adaptation of the caregiver reaction assessment for use in brazil with informal caregivers of the elderly examined by a committee of judges, for its semantic, idiomatic, experimental and conceptual equivalencies, in order to establish a preversion brazilian cra, culturally equivalent to the original version. Stroke caregiver outcomes from the telephone assessment.
Each item is rated on a 4point likert scale, ranging from 1 strongly disagree to 4 strongly agree. Short version of the burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. The kingston caregiver stress scale is a scale designed to allow a family caregiver to express the level of stress that he or she is currently feeling around the duties of dementia care. Caregiver burden scale questions please, place a tick in the appropriate box. Subjective burden is a central variable describing the situation encountered by family caregivers. Quality of life and psychological distress of caregivers. Stroke caregiver outcomes from the telephone assessment and skillbuilding kit task tamilyn bakas, dns, rn, faha, faanassociate professor, indiana university school of nursing, indianapolis, indiana carol j. Burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. Caregiver burden was measured at 1 year using the relatives stress scale completed by 155 caregivers and the bakas caregiver outcomes scale 143 caregivers. Talk with your physician about ways that you can enhance balance in your roles.
The healthrelated quality of life impact of caring for a. The bakas caregiving outcomes scale bcos is an instrument designed to measure life changes in family caregivers of persons with chronic illness. West indian medical journal bakas caregiving outcomes scale. Caregiver burden was assessed using the bakas caregiver outcomes scale. The z a r i t b u r d e n i n t e r v i e w scalelibrary. Tamilyn bakas, dns, rn, faha, faanassociate professor. Measuring the familyfriend caregiver experience in.
The impact of the carepartners program on caregiver burden was evaluated by the oberst caregiving burden scale ocbs and bakas caregiving outcomes scale bcos on two oncology units medicaloncology n 17 and blood marrow transplant n 21 at three times. Early palliative care for family caregivers of persons. Development and psychometric testing of the bakas caregiving outcomes scale. Caregiver burden considerably affects the lives of families providing care to people with advanced cancer. Lack of appropriate discharge planning along with early discharge of stroke survivors can place unrealistic demands on caregivers. The 15item bakas caregiving outcomes scale bcos measures caregiver life changes specifically as a result of providing care.
Bakas and burgener 2002 found that difficulty with carrying out caregiving tasks was a strong predictor of emotional distress and other negative health outcomes in the stroke caregiver. The scale is scored by calculating the mean of all items answered with a score range of 0 to 4. Therefore, a distinction between the use of the terms, caregiving and caregiver, in the extant literature is warranted. Farran, dnsc, rn, faanprofessor and the nurses alumni association chair in health and the aging process. Anxiety and depression associated with caregiver burden in. Through a correlational design, a convenience sample of 90 iranian family caregivers of patients with heart failure was selected. Subscribing to this logic, caregiver and caregiving equate to the same, when in essence, the terms may represent two entirely different concepts. Caregivers are often unprepared and overwhelmed with the responsibilities of providing care to stroke survivors, which can lead to negative physical and psychological effects purpose.
Cis 2, csi 9, caregiver wellbeing scale 3 and zarit burden interview zbi 12. Pilot study results 5 main messages supported by a multistakeholder advisory, our objective was to develop and test an online survey of the familyfriend caregiver experience in ontario that would provide essential information to government for policy planning and decisionmaking. The aim of this study was to validate the greek translation of the revised bakas caregiving outcomes scale bcos with a sample of informal caregivers of people with advanced cancer receiving outpatient palliative radiotherapy. Using hierarchical multiple regression, 63% of the variance of the 12item bcos in sample no. It is a 15item questionnaire measures changes of caregivers perceptions as a consequence of the provision of their care for their patient. Functional independence measure, bakas caregiving outcomes scale, reintegration to normal living index across admission, discharge, and followup. The scale was originally developed to measure life changes in family caregivers of stroke survivors, but has also been used in family caregivers of those with heart failure and a variety of other. Family caregivers of stroke survivors experience a variety of negative social, emotional, and healthrelated outcomes as a result of providing care. What is the first thing to do when scoring the bakas caregiving outcomes scale bcos. Bakas caregiving outcomes scale west indian medical journal. Significant changes were found between intake and discharge on the hospital anxiety and depression scale total score p0. Caregiver outcomes of the reachhf multicentre randomized.
Caregiver outcomes included the hospital anxiety and depression scale hads, 17 generic hrqol eq5d5l questionnaire, 18 family caregiver quality of life famqol, 19 caregiver burden questionnaire for heart failure cbqhf, 20 and caregiver s contribution to selfcare of hf index ccschfi. Search for abbreviation meaning, word to abbreviate, or lists of abbreviations. Caregiver hrqol was assessed using the sf12v2, which measures mental mcs and physical pcs components of hrqol. The mcas is a modified version of the caregiver appraisal scale cas developed by mp lawton lawton mp, et al. Bcos bakas caregiver outcome scale 16 couples enrolled to date at 6 months postdischarge. The new hfcql scale showed potential as a quality outcome measure in hf caregivers, and might be used to screen hf caregivers for poor quality of life. The bakas caregiving outcomes scale bcos was originally developed in 1994 to measure life changes in family caregivers. Psychometric testing of the revised 15item bakas caregiving. Decide if it is not true or hardly ever true, or somewhat true or sometimes true, or very true or very often true for your child.
The scale is designed for community living lay caregivers, not institutional care staff. Validation of bakas caregiving outcome scale for brazilian. Issues such as quality of life are now widely used in clinical trials and in patient management for assessing morbidity and the impact of treatment. Dont guess, assume, lead, or accept responses that do not. Informal caregivers, older adults and transportation. For this part, we are interested in how confident you are that you can keep up your own activities and also respond to caregiving situations. Carer impact the impact of a disease on a patient is an increasingly important outcome measure in medicine and healthcare.
Nearly always please circle the response the best describes how you feel. Short version of the burden scale for family caregivers. Pain scale this scale summarizes the presence and intensity of pain. Validation of the revised bakas caregiving outcomes scale in greek caregivers of patients with advanced cancer receiving palliative radiotherapy by ourania govina, grigorios kotronoulas, kyriaki mystakidou, margarita giannakopoulou, antonios galanos and elisabeth patiraki. Ideas from aphasia caregiver and dementia caregiver groups page 5 of 6 reference list bakas, t.
Development and psychometric testing of the bakas caregiving. The ocbs and bcos were translated from english into arabic in accordance with guillemin et al. Time and difficulty of tasks provided by family caregivers. A resource inventory for practitioners ii about family caregiver alliance family caregiver alliance fca was founded in 1977 to focus attention on and develop supports for family caregivers of adults with chronic care impairments and in particular. Depressive symptoms in patients with heart failure. Background the burden experienced by family caregivers is the most important caregiver related. Validation of the revised bakas caregiving outcomes scale. The stroke survivors completed the barthel index and the geriatric depression scale. Factors related to caregiver burden in caregivers of patients. Training informal caregivers of patients with stroke. The act of the caregiver precedent is described by caregiving antecedent. Join a caregiver support group eat a wellbalanced diet see your physician for a wellbeing checkup treat yourself to something fun laugh. To psychometrically test the revised 15item bakas caregiving outcomes scale bcos measuring life changes specifically resulting from providing care.
Caregiver burden was measured with the revised greek bakas caregiving outcomes scale, and psychological distress was screened with greek hospital anxiety and depression scales. Psychometric testing with two convenience samples of family caregivers of stroke survivors ns 92, 104 was conducted using item analysis, cronbachs alpha, factor analysis, and hierarchical multiple regression. A convenience sample of 202 stroke survivor caregiver pairs were recruited in the neurosurgery unit from march 2015 to march 2016. This project is supported by the health resources and services administration hrsa of the u. The impact of postmild stroke neurobehavioural sequelae. Has your social life, eg with family and friends, been lessened. The higher the score the more prepared the caregiver feels for caregiving. Family caregivers are known to experience many negative outcomes as a result of providing care for a stroke survivor after discharge to the home setting bakas, 2009. Depression severity was measured by the patient health questionnaire9 phq9. Significant gains were observed on the strength, communication, activities of daily living, social participation, memory, and physical domains of the stroke impact scale. A change for the worst in caregivers was associated with improvements in functioning between admission and discharge p caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective wellbeing, and physical health as a result of providing. The participants were assessed at three different times by face to face or telephone interview.
All items except items 1, 5, 10, 17, and 20 were reverse coded in such a way that 1 implies the low to no caregiver burden and 4 indicates high. The present study examined the reliability and validity of the bsfcs. Pdf validation of the revised bakas caregiving outcomes. This manuscript examines caregiver burden among a small sample of primary caregivers of stroke patients in jamaica. The original 10item bcos was improved by adding five items. Be sure the caregiver listed at least two items specific to. Factors associated with caregiver reports of sleep. Anxiety and depression were selfreported by the caregiver as a physician diagnosis. To evaluate the impact of the family informal caregiver stroke selfmanagement ficss program on burden and life changes resulting from providing care among family caregivers of. Validity and reliability of the zarit burden interview in. The instrument has been both self and intervieweradministered. After each question, circle how often you feel that way.421 1487 542 824 1146 693 884 236 1384 1280 1391 1258 477 1042 300 1148 30 95 1032 1338 838 9 381 780 229 354 419 1156